Happy Birthday Maximus

Today is Maximus Xavier's first birthday. As I recall, he arrived a little earlier than we expected. I had just finished cooking dinner, potato soup, on January 22 last year when I woke Mel up from a nap. About that time, her water broke, so we got my aunt and uncle to come get Emma, and Mel and I left for the hospital. The next morning, Maximus was born. He has grown so much in the past year. He weighed 7 pounds 8 ounces when he was born. He now weighs over 23 pounds. And his height has increased from 20.5 inches to over 31 inches.

We have had some challenges during the year, including dealing with his torticollis and plagiocephaly, but he successfully finished physical therapy and his head was reshaped using a cranial orthosis. One thing we are still working on is getting him to sleep through the night. With the exception of a night or two, until this week Maximus has gotten up at least once every night for a bottle. The past several nights though we have not fed Max when he was up. We have been able to get him to return to sleep without one. Friday night, he went back to sleep very quickly after getting his pacifier. I think we may very soon be done waking up with him each night. It will be very nice to regularly be able to get a full night's sleep once again.

He has also begun walking recently. I am looking forward to seeing what he will begin to do next.

Max's Helmet

Last month, Maximus was fitted for a cranial remolding orthosis, a helmet, to correct the shape of his head. Yesterday we got the helmet from the orthotist. Max has the condition plagiocephaly, or flat head syndrome, due to his having torticollis, which causes him to turn his head predominantly to the right. Because he spent a lot of time lying on his back, and turning his head to the right while on his back, the right side of his head is flattened some. This helmet will allow the flattened parts of his head to grow out while restricting grown in the directions where his head has already grown out. After a brief break-in period, Max will be wearing his helmet for twenty-three hours a day until his head has a rounder shape. The orthotist estimated that this will take until Max is about eleven months old. So he could be wearing his helmet for about five months.

Prior to receiving the helmet yesterday, I was concerned that Max would have a problem with having the helmet on his head. However, its presence didn't seem to bother Max one bit. He does not act any differently whether it is on or off, and he hasn't tried to remove it from his head. For a couple of weeks, until he is completely adjusted to having the helmet, Max will probably have a harder time sitting up and rolling over. However, he will have the benefit of being able to fall over from a sitting position without hurting his head. Of course, when he finally gets rid of the helmet, he may be in for an unpleasant surprise when he does bump his head. We are going to have to start washing Max's hair daily now, instead of every other day as we have been doing. Otherwise, the helmet, which we will also have to wash daily, will begin to smell bad. I am really looking forward to seeing the progress that Maximus makes by wearing his helmet.

Wrap-up of the Past Week

We've had a pretty busy week this past week. Last Saturday we all went to the Mall of America where Emma finally got to ride on the carousel. She rode on it three whole times! I thought that since she was tall enough to ride on her own, but I wanted to go with her, I would have to pay as well, so I paid enough for two rides, one for her and one for me. However, when we got on, they only charged us for her, so we had enough points left for her to ride a second time. Somehow though, the points were not deducted from our ticket for on of her first two rides, so she was able to ride a third time. She had a great time on the carousel.

On Sunday we went to the Minnesota Zoo. Emma wanted to play in the splash pad, but we told her we would do that before leaving instead of right when we got there. As a consequence, Emma did not want to spend much time looking at any particular animal. She kept saying that she wanted to see the next animal. I am pretty sure this was so we could finish with looking at animals so she could play in the water. When it was finally time to go home, Emma was not happy about it. She screamed all the way to the car that she didn't want to go home yet. She fell asleep in the car, but when she woke up when we got home, she began whining again. She ended up spending a bit of time in her room alone until she managed to calm down.

On Monday, Max rolled over from his back to his tummy! He had begin rolling the other way regularly last month, but now he can roll both ways!

Max's physical therapy appointment for his torticollis was Wednesday. He is doing really well, although he still tilting his head to his left. This appointment was also a lot more pleasant than the previous two as Max refrained from screaming for most of the appointment. He did complain some during one of the exercises he did though. It was nice to not have him screaming for the entire appointment though.

I had a follow-up appointment from my gallbladder surgery yesterday. Everything looks just fine.

I have had quite a bit of work lately, especially since Wednesday this week. All of these other appointments haven't helped with getting it done, and we have another appointment this afternoon. However, working at night, I have been able to get things done. Well, I've gotten most of it done anyway.

The Craniofacial Clinic

Back in June I blogged about how Maximus has torticollis, a condition which causes him to tilt his head to the left and look to the right. He has been going to physical therapy since then to work on that. We have also been doing exercises with him at home to stretch out his neck muscles to prevent this. However, despite this intervention, he still prefers to turn his head to the right when he is lying down, and as a result of this, he has developed plagiocephaly, or a flat spot on his head.

The hope was that his physical therapy would help in rounding his head out, but this has not happened. So today we went to the craniofacial clinic at a local hospital to have him evaluated. After taking some measurements, the nurse practicioner and orthotists decided that a helmet would help to correct Maximus's plagiocephaly. Maximus was fitted for a helmet. To do this, the orthotist put a cap on his head that contained reflective dots. She then scanned around his head with a laser which took information from the position of the dots. A computer then created a three-dimensional image of Maximus's head from the data it received. Maximus also needed to have a CT scan done to make sure that two of the bones of his skull had not yet fused. He actually did very well for that, especially considering how bundled up he was. Maximus hates being bundled up.

This afternoon, after we got home, we got a call from the nurse practitioner letting us know that the CT scan showed that everything was normal, and that we can proceed to order Maximus's helmet. I will call the orthotist tomorrow to set that up. She was supposed to email us a file showing the different color and pattern options, but she apparently did not get around to that yet. Hopefully she can do that when I call tomorrow so they can get to work on Maximus's helmet.

Torticollis

Last Wednesday, under the recommendation of his pediatrician, I took Maximus to see a physical therapist to treat him for torticollis. Torticollis is a condition in which the head is tilted to one side while the chin is elevated and turned to the opposite side. In Maximus's case, his head is tilted to the left and he tends to look to the right. One side effect of his condition is that the right side of his head is a little flattened because he turns his head to the right and spends a lot of time lying on the floor.

The physical therapist gave me a couple of exercises that we are supposed to do with Maximus several times a day. These exercises should help to stretch his neck muscles, correcting the condition. We are also supposed to do whatever we can to encourage him to look to the left more than to the right. This includes feeding him so he looks to the left while he eats. I have found this to be difficult for me, but it is something I need to learn to do for him.

Today I took Maximus back to the physical therapist for a second appointment. He seems to be doing fairly well, and he is getting beginning to tolerate the exercises and being on his stomach even more. Since we are comfortable with doing his stretching exercises, we just have to go to see the physical therapist every other week now instead of once per week. I feel very encouraged that Maximus will benefit from his exercises and from seeing the physical therapist.